Thursday, January 28, 2010

This is wonderful

WELCOME TO HOLLAND
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability- to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip -to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

" Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ...about Holland.

Amy says:
I indeed feel the pain of the lost dream of Italy, I don't think the pain will ever go away. I absolutely am finding more and more lovely things in Holland. I cannot imagine ever having a day when I don't pine for Italy or get my feelings hurt when bad things are said about Holland. I can however imagine yet another day of smiles and hugs and "love you, Mom"s and that is what makes being in Holland so lovely.


Rob says:
I think Holland is nice sometimes too, but other people sure make Italy sound good. The more I look around, the more I see almost everyone I know has been to Holland as well. So maybe those in Italy are the minority, and maybe they are missing something that we are learning.

1 comment:

Jana said...

I had that description given to me shortly after Gavin was born. It is the BEST way I have found to help others understand. You do grieve in a way for that loss, because that was the "planned destination", however....I cannot imagine my life not being touched by all the beautiful things in Holland. Everywhere we go I constantly am told, "oh, he is such a happy little baby/boy/guy. How sweet. Or how cute is he...Look at that sweet smile!" And it reminds me how much a little piece of heaven he is in our home. I get the feeling that Emma is for you as well. :)